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| welcome to enewslineWelcome to our updated format for eNewsline. We refreshed the look based on feedback from a readership survey we conducted earlier this year. We welcome your feedback at [email protected]. |
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news
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researchLLS announces new video feature Brian Druker, M.D. LLS and Brian Druker, M.D., director of OHSU Knight Cancer Institute at Oregon Health and Science University, have had a long and fruitful partnership.LLS supported Druker’s early pioneering work that led to the development of a novel enzyme inhibitor now known as Gleevec®, which is saving countless lives of patients with chronic myeloid leukemia, and helping patients with other types of cancer as well. In recent years Druker has turned his attention to acute myeloid leukemia and other types of leukemia, and through our Specialized Center of Research program, LLS has continued to support his work.LLS has unveiled this video, posted on the LLS.org video gallery , in which Druker talks about how the early funding from LLS helped him at a critical juncture in his research, when he was trying to translate a laboratory discovery to clinical application. Druker says that when people ask him where they should donate their money he tells them that The Leukemia & Lymphoma Society is one of the best investments of your funds. “LLS is making an impact and accelerating progress.”The video can also be viewed on our YouTube Channel.Read more here.Back to top
 LLS and johns hopkins collaborate on a phase II clinical trial to advance innovative immunotherapy for multiple
myeloma patients
LLS and Johns Hopkins University School of Medicine are collaborating on a novel immunotherapy approach to treat patients with poor prognosis myeloma.
The approach shows promise for patients with other blood cancers as well.
Under the leadership of Ivan Borrello, M.D., Johns Hopkins Kimmel Cancer Center, a team of researchers is testing a method using marrow-infiltrating lymphocytes (MILs) – immune T cells that are specifically trained to recognize and kill myeloma cells. MILs are produced from a patient’s own bone marrow cells, expanded outside of the patient and then infused back into the patient following an autologous stem cell transplant.
Learn more about this project here.
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mf challenge grants
The MPN Research Foundation and LLS are proud to announce the winners of the second round of the MF Challenge grant program. Each researcher will be awarded $100,000, to focus on fibrosis and myelofibrosis. Fibrosis is the formation of excessive fibrous connective tissue in place of healthy tissue and myelofibrosis is characterized by fibrosis in the bone marrow. Winners of these one year concept grants are:
John Varga, M.D., and Jonathan Licht, M.D. (Northwestern University)
Golam Mohi, Ph.D., (State University of New York Upstate Medical University)
Emmanuele Passegue, Ph.D, (University of California at San Francisco)
Xiaoli Wang, M.D., Ph.D., (Mt. Sinai School of Medicine)
Click here to read more.
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patient access, education & advocacy helping pediatric cancer patients and their families in times of needLLS is helping the UnitedHealthcare Children’s Foundation (UHCCF) get the word out about a program that is an important resource for many of the patients and families served by LLS.LLS wants its community to know that UHCCF, a nonprofit organization dedicated to enhancing the quality of children’s lives, provides grants up to $5,000 to help families in need of financial assistance pay for their child’s health care treatments, services or equipment not covered, or not fully covered by their commercial health insurance plan. The plan only applies to patients who are covered by a commercial health insurance plan and families must meet certain economic guidelines. Families who receive government health coverage are ineligible. To qualify for a grant, children must be 16 years of age or younger and reside in the U.S. These grants are available for medical expenses families have incurred 60 days prior to the date of the application as well as for ongoing and future medical needs.”This program is an invaluable resource for many of the families served by The Leukemia & Lymphoma Society,” said Scott Riccio, LLS’s senior vice president of patient access, education and advocacy. “The last thing a family needs when coping with their child’s serious diagnosis is worrying about how they are going afford to access the care their child needs. This program helps to fill a significant gap for many families.”Parents or legal guardians may apply for grants at www.uhccf.org and there is no application deadline.Back to top education programsArchived Patient Education Porgrams
Listen to past patient education programs that cover important blood cancer topics ranging from new treatments to how to deal with practical financial issues.
Archived Virtual Lectures for CE Credit
Virtual lectures are available to healthcare professionals for continuing education credit.
Webcasts
Free videos for patients, caregivers and healthcare providers about survivorship, financial health matters, disease updates and other topics.
NEW Advances in Blood Cancers-Update on CML
updated publications
Pain Management Facts
Información sobre el manejo del dolor
The Myeloma Guide: Information for Patients and Caregivers
Myeloma
Free Education Materials
Co-Pay Assistance Program
The Leukemia & Lymphoma Society’s Co-Pay Assistance Program helps eligible patients pay insurance premiums and meet co-pay obligations.
CML Blog
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public policyfollow, like, and find a cure!  Breaking news! Urgent actions! Crucial feedback needed!You’ll find all that and more on the LLS Office of Public Policy’s Facebook and Twitter pages. When you connect with us on social media, you’ll hear about everything the minute it happens, connect with other people who are in this fight, and get to tell us what you think about the important issues of the day.“Like” us on Facebook
Follow us on TwitterBack to top |
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communities & campaigns taking on the john muir trail while supporting the missionDan Rooker, a Raleigh, N.C., resident, has set a big goal for this summer. Rooker aspires to be the first stem cell transplant double leukemia and lymphoma survivor to complete all 212 miles of the John Muir Trail in California. He will set out on August 12 and anticipates finishing on September 8. As he has prepares for his journey, he has also been raising funds as a member of Team In Training. Read more about Rooker’s story here.If you would like to help make Rooker’s dream come true or find out more about his journey, please click on this link.Back to top  Man & Woman of the Year campaign raises $22.7 million; two amazing winnersLLS’s 2013 Man & Woman of the Year campaign exceeded last year’s record, raising $22.7 million to support LLS’s mission. In its 23rd year more than 850 candidates participated and collectively surpassed last year’s fundraising record by $3.5 million.
Out of all those candidates, 16-year-old San Antonio leukemia survivor Daniel Edelen, and Illinois resident Barbara Bernick, a graduate of DePaul University School of Public Service, earned the titles of national Man of the Year and Woman of the Year.
Click here to learn more about the winners.
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retail partners helping to light up the summer 
This summer The Leukemia & Lymphoma Society’s (LLS) national retail partners are helping to shine a light on blood cancers and the need to support research to help find cures.
Retail partners engage their staff and customers in supporting the LLS mission by asking at the point of sale if they want to help end cancer by making a donation to LLS. Retail programs like these have a significant impact on the campaign and are projected to raise $7.1 million for the 2013 walk.
Burlington , our number one national partner has launched their 12th consecutive Light The Night retail program and is currently selling Light The Night paper balloon icons in all of its more than 500 locations nationwide through October 19th.
Global Franchise Group – Great American Cookies®, MaggieMoo’s Ice CreamTreatery®, Marble Slab Creamery® and Pretzelmaker® are launching their program on August 1st.
PVH Corp – Calvin Klein, Tommy Hilfiger, IZOD, Van Heusen and GH Bass & Co. stores are launching their retail program on August 12th.
We encourage everyone to visit our national retail partner locations in their community, do some shopping, enjoy some treats and support LLS!
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focused philanthropyideas for retirement Retirement is a major milestone in anyone’s life, but many retirees find they have new investment responsibilities and many new tax challenges to look out for. Our latest pamphlet “Ideas for Retirement” can help you plan ahead to avoid some of the roadblocks on the way to a secure and comfortable future. Request your copy at [email protected].Or click here to find out more.Back to top |
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